December 25,26,27 2009

I didn't have treatment over these days but boy, have things with my body changed. Over the past few weeks, I was told that side effect wouldn't start until about the second week. Well, IT happens. Over these 3 day things have changed. Here is what I am going through at this time. My lips are swollen and bleed at night. My mouth feels like someone cut me with razor blades. My throat feels like I have been eating sand for a month. I have a prescription for meds to ease the pain in my throat. This medical is a 2 part liquid that is mixed and gorgal. This seems to ease the throat pain for a couple of hours. Since the return home from the hospital, I have not been able to eat, now I am not able to drink either. This is something that hits me the hardest. Not being able to drink something cold, any time you want it. This hit me hard when I first got home but after a couple of days I was drinking. I didn't tell the doctors but, I was enjoying it so much. I was prepared for these side effects but, not yet! I wanted to drink just a little more water before this happens. I have been told that some of the side effects will stay with me up until 2 months after I finished treatment. Now, that is something to look forward too...lol
I have also installed a humidifier in the bedroom. Last night,Sunday, was the first night with it so we will see.
One other thing I didn't mention is the saliva problem. This is realy bad and could stay with me for a while. Saliva is made up of 2 different components : water and heavy thick mucus. At this piont, the water is not being produced and all that is in my mouth is the thick mucus. I don't like it and it can scare you sometimes. I am constantly rinsing with a cocktail made of: water, salt and baking soda. This does help break down the mucus. Sometimes it is so thick that you can not catch your breath when you what to. This is the scary put. You go to take a breath and ..... nothings there. I have learned to calm down , cough, and things will work out. What bothers me is that since I am getting these side effects early, will they get worse, easier, or is the the worse. The doctors were worried about how radiation would affect me since I have this other condition called Morphea, well, I guess they now know. I am glad that I meet with Dr. Holland tomorrow. I hope he can answer a few of my questions.